Choroideremia
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Meet the Kids

Craig
Our son Craig is sixteen years old and loves sports. He plays high school football, paintball, snowboarding and fishing.

Read Craig's Story

 
Kristen
Kristen is a carrier of Choroideremia. Her grandfather had the disease and eventually went blind. Her two brothers have Choroideremia. Kristen hopes to one day get married and have children. She has a fifty fifty chance of passing the disease on to her children.

She is very hopeful that research will find a cure for choroideremia.

Read Kris's Story

 
Joshua
Josh is a sophomore in high school, class president, very active in student council, and maintains honor roll status. In his spare time he volunteers at the local library, and works at a part time job.

Read Josh's Story

 
Kevin
Kevin enjoys swimming, football, baseball, basketball, and movies. He is outgoing and loves to have fun.

Read Kev's Story

 
Edward J
E.J. is my eldest son. He loves art and drawing. He is very talented. He drew a black and white sketch of roses for me which I have hanging up in my house. He also has a comic book collection of about 500 comics. He loves Stephen King novels. He enjoys writing his own stories,too.

Read EJ's Story

 
Max Timko
My name is Max and I found out I had choroideremia 3 years ago when I was five years old.

Read Max's Story

 
Timothy
Tim is a 15 years old and is in the early (relatively) stages of Choroideremia. He loves computers and has even built his own. He enjoys school and he is a good student.

Read Tim's Story

 
Liam
My name is Liam. My favorite things are books,trains, and dinosaurs. My best friend is my dog Brody.

Read Liam's Story

 
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